Pioneering Gene Therapy Freed Her of Sickle Cell. Is a Cure at Hand?

Such treatments are extraordinarily promising and costly. Will the Biden administration commit to spending that could speed clinical trial results?

W.H.O. Experts Seek Limits on Human Gene-Editing Experiments

The panel also called on countries to ensure that beneficial forms of genetic alteration be shared equitably.

‘On That Edge of Fear’: One Woman’s Struggle With Sickle Cell Pain

Cures for a disease that mostly afflicts Black people seem near but may come too late for Lisa Craig, who lives with an agony like knives stabbing her bones.

These Sisters With Sickle Cell Had Devastating, and Preventable, Strokes

Kyra and Kami never got a simple test that could have protected them. Their story exemplifies the failure to care for people with the disease, most of whom are Black.