As a #pwME ( #MyalgicEncephalomyelitis, #SevereME ) I blogged for #SevereMEAwarenessDay #SevereMEDay

https://crippledqueeranglo-europeanranter.blogspot.com/2022/08/the-social-care-i-need-from-trafford.html

Cc @CareQualityComm @TraffordCouncil

#SocialCareCrisis #Dehydration #Malnutrition etc.

#DoctorsWithME have written a public-letter which amounts to an excoriating attack on #NICE.

“NICE is holding scientific conclusions hostage to medical norms and belief systems, in the face of collapsed scientific and legal justifiability.”

#MyalgicEncephalomyelitis #ME #MEcfs
#ChronicFatigueSyndrome #CFS #CFSme
#SEID
#G93point3 #G93

#EncefalomielitisMialgica #EM #EMsfc
#SíndromeDeFatigaCrónica #SFC #SFCem
#G93punto3 #G93

https://doctorswith.me/public-letter-to-dhsc-mhra-hoc-nice-call-for-a-medical-regulatory-agency/

“The pause in #NICE's publication is a temporary setback, and it is evidence of how determined the psychosocial school is to maintain its status quo. We can and should oppose this pause and support immediate publication of the #guidelines. We must provide public accountability if there is any interference in what NICE itself says was a rigorous process.

The tide will continue its turn. #GET and #CBT are on the way out because there is no scientific basis for continuing to use them.”

#MyalgicEncephalomyelitis #ME #MEcfs
#ChronicFatigueSyndrome #CFS #CFSme
#SEID
#G93point3 #G93

#EncefalomielitisMialgica #EM #EMsfc
#SíndromeDeFatigaCrónica #SFC #SFCem
#G93punto3 #G93

http://occupyme.net/2021/08/23/not-nice/

“Following the pause to the publication of the guideline #NICE has today, 27 August 2021, announced that it is to hold a roundtable event to better understand the issues raised and determine how it can gain support for the #guideline to ensure effective #implementation.”

#MyalgicEncephalomyelitis #ME #MEcfs
#ChronicFatigueSyndrome #CFS #CFSme
#SEID
#G93point3 #G93

#EncefalomielitisMialgica #EM #EMsfc
#SíndromeDeFatigaCrónica #SFC #SFCem
#G93punto3

https://www.s4me.info/threads/nice-pauses-publication-of-updated-me-cfs-guideline-hours-before-publication-was-due-17th-august-2021.21897/page-64

UK health standards body delays new ME guidance in therapy row | ME / Chronic fatigue syndrome | The Guardian

Charities dismayed as move to stop recommending graded exercise therapy is opposed by some medical groups

GET might make some people feel better but doesn't cure ME/CFS. Likewise, CBT can help some people deal with their condition, but cannot possibly cure the illness, any more than wishing can.

#science #medicine #health #ME #MyalgicEncephalomyelitis #CFS #ChronicFatigueSyndrome #GET #GradedExerciseTherapy #CBT #CognitiveBehaviouralTherapy

https://www.theguardian.com/society/2021/aug/17/uk-health-watchdog-nice-delays-new-me-guidance-therapy-row-chronic-fatigue